Resources for Service Users, Commissioners and Providers.
For more information click on the links below:
Dementia Revealed – What Primary Care Needs to Know – A Primer for General Practice 2nd edition
This paper was prepared in partnership by NHS England and Hardwick CCG with the support of the Department of Health and Royal College of General Practitioners. Dr Elizabeth Barrett, Shires Health Care – Hardwick CCG, Professor Alistair Burns, NHS England. To download it click dementia-revealed-toolkit
Social Care films about dementia
These short films pack a lot in to a few minutes – often by focusing on the stories of one or two people, and drawing out lessons from these experiences. The films introduce various concepts and share good practice and key learning points are captured in the narrative on each film’s introductory page. To view what is available click HERE
NICE Evidence Search
This is a free online portal to several evidence databases including Medline, Cochrane, Social Care Online, Royal College databases etc. You may access Quality and Productive (‘QIPP’) case studies here, or follow this link to go straight to the QIPP collection
The Mental Health Crisis Concordat
The Mental Health Crisis Care Concordat is a national agreement between services and agencies involved in the care and support of people in crisis. It sets out how organisations will work together better to make sure that people get the help they need when they are having a mental health crisis. Visiting the MH Crisis Concordat website will give you insight in to who is doing what across the country.
Hospitalisation Happens: A guide to hospital visits for people with memory loss
This guide published by Doncaster and Bassetlaw Hospitals NHS Foundation Trust describes some things that people with memory loss and their carers can do to make hospital visits more straightforward and less stressful. Read the guide HERE
Toolkits for faith organisations and businesses
These toolkits and guides have been developed for different types of organisations by the Dementia Action Alliance. Click HERE to view them.
Cost Effectiveness of Assistive Technologies
Stirling University has published a literature review of the cost effectiveness of assistive technologies in the dementia care arena. The report can be read: HERE
Social Care Institute for Excellence – new Film
A new, brutally honest film launched in September reminds us that though dementia causes the loss of some abilities, people’s feelings remain intact. Four people with dementia talk about their emotions: fear, guilt, embarrassment, isolation, powerlessness. The film also shows the difference a supportive, empathetic relationship can make. The film has been launched as part of World Alzheimer’s Month. Living with Dementia – on Social Care TV
The Mental Elf
This is a website from Oxford based Minervation Ltd is dedicated to keeping people up to date with reliable mental health research, policy & guidance. The site is populated by a range of contributors and offers the option to receive a free weekly newsletter. To view the site click: HERE
MindTech Health Care Technology Co-operative – NHS Institute for Health Research
Mindtech was launched in 2013 as one of 8 NIHR Technology co-operatives. The slides from the launch event are available on line and offer a useful insight in to some of the opportunities technology can offer people using a range of mental health services and with a range of conditions. The slide sets can be viewed HERE
eMental Health – NHS Confederation.
The NHS Confed’ has produced a discussion paper on mental health and technology:
E-mental health is the use of information and communication technologies (ICT) to support and improve mental health, including the use of online resources, social media and smartphone applications. Greater use of information and technology could help us address resource challenges. E-mental health also has the potential to support cultural transformation and a move towards a social model of health, by empowering service users to exercise greater choice and control and to manage their own conditions more effectively. To read the full paper click HERE
The science of the mind: investigating mental health – OpenLearn - Open University
A series of 16 podcast tracks: The Blackthorn Garden case study illustrates a holistic approach to helping people with mental health conditions integrate themselves back into society. The tracks can be listened to on line or can be downloaded. To view what’s on offer or to listen to a track click HERE
MindEd MindEd is an on-line resource that currently offers over 170 separate e-learning sessions across four different curriculums all focused on children’s mental health.
You can use MindEd in many ways, but basically it is there to help you become informed and better equipped when dealing with children and young people. It is aimed at anyone and everyone working regularly with children or young people, 0-18 years of age. There are a range of materials extending from the general level to more specialised levels. The majority of children develop healthy minds and bodies, but it helps us to help them if we understand better what is healthy, how to support good health and what needs closer attention. To visit the site click HERE (you will need to register to get full access)
Post Diagnosis support and information – South Gloucestershire
The aim of this project is to share ensure that all patients and carers get comprehensive access to post diagnosis support and information via a range of media: face to face, group courses, handbooks, leaflets, telephone and the web. Courses for GPs are also being developed. For more information contact : Paul.Frisby@sglos-pct.nhs.uk
Making our health and care systems fit for an aging population
Published by the King’s Fund earlier this year this report provides a framework and tools to help health and care service leaders improve the care they provide or commission for older people.
The document can be downloaded HERE
Alzheimer’s Society good practice guide
Optimising treatment and care for behavioural and psychological symptoms of dementia: A best practice guide
This evidence-based guide is for health and social care professionals, designed to help improve treatment and care of the behavioural and psychological symptoms of dementia. The guide and supporting documentation can be downloaded HERE
Personality Disorder Awareness Training
Do you work with clients who have complex emotional needs or personality disorders? Do you find this work challenging but don’t understand why?
The Personality Disorder Knowledge and Understanding Framework may be of help. Click HERE for more info
Dementia Awareness for Staff
The Knowledge Team has prepared a document sharing material that will be of interest to those wishing the raise the awareness of dementia amongst non-specialist health and social care staff. The document describes projects taking place across the south of England and also identifies existing online resources that could be utilised. The document can be found here: dementia awareness initiatives 280514
Dementia Brain Tour – Alzheimer’s Society
The Alzheimer’s Society UK has produced a series of nine videos, called the ‘dementia brain tour’. These give an accessible overview of how the brain works and the way it is affected by various types of dementia, including Alzheimer’s disease, Posterior Cortical Atrophy, Vascular Dementia, Dementia with Lewy bodies and Fronto-Temporal Dementia. To view the course visit the Alzheimer’s society UK website HERE
Dementia Friendly Hospital Environments
‘The Dementia Centre’ (Stirling University) has created a virtual tour exploring dementia friendly design in a hospital context. The tour covers extensive environments from hospital entrances through to lifts, corridors, shops and gardens and, of course clinical spaces like wards and day rooms. To view the tour click HERE
Yorkshire Ambulance Guidance for Crews caring for people with Dementia.
Basic information for ambulance staff and sign-posting to further information Read the guidance here: DementiaLearningResourceforAmbulanceStaff
Personalised Dementia Information Prescriptions
The project to develop Personalised Dementia Information Prescriptions builds upon an Oxfordshire based initiative called Dementia Web.
Dementia Web is a national website supported by a well-established charity, Guideposts Trust, which provides care, support, activity and information for vulnerable children and adults.
In May 2012 Dementia Web launched a national 24 hour 7 day per week telephone helpline, recognising that many people could either not access the internet or that complex or emotional needs could not always be met on-line. Call handlers found there were gaps in the information that callers had available to them and a number of common issues emerged that made it difficult for them to deal with calls effectively. The most significant of these was that callers had either never been given or had forgotten important information that may have related to the person’s care or condition. This raised the need for timely, specific and personalised information. For more information click: HERE
News and resources from the DH and others
Searchable map comparing the various aspects of dementia care:
There are 3 maps each with information of several indicators:
- In the community – waits for and performance of memory clinics
- At hospital – how alert local hospitals are to dementia, what the prognosis is and how long people with dementia are likely to stay in hospital
- The future of care – predicted prevalence, dementia friendly communities and involvement in research in a locality in the future
It is recognised that the availability and quality of data is not uniform across the country – if you believe data relating to your Trust or CCG is inaccurate please contact: firstname.lastname@example.org.
This calculator was developed by and validated by the ‘Dementia Partnership’. The calculator enables local care economies to estimate prevalence and diagnostic rates and to view data at several levels of granularity down to GP Practice.
You might find some of the materials covered on our Improvement Science section useful if you are responsible for managing an improvement project in the ThamesValley region. In this area of our website, we highlight resources and information which we hope are of value to those trying to develop, adopt and spread innovation and best practice.
Alzheimer’s Society produces a range of publications and resources, from guides to implementing good practice and planning quality care services to practical ideas for improving the lives of people with dementia.